Monday, April 30, 2012

Please sign this

I don't know how much good it will do as 10,000 signatures are needed and so far only 200 people have signed. Sufferers don't like to share that they are afflicted because it is so awfully debilitating, scaring and malodorous, but we need attention. We need research. We need help. Our insurance companies don't want to pay for certain treatments even though they work for some people because they are not FDA approved treatments for HS. When I read peoples stories and problems on the support group I sometimes breakdown into tears. There are young teenagers already getting the worst of it...they are miserable and they have no one there to help them or to tell them they are not disgusting. When adults can't find solace in their romantic partners and twenty somethings get called gross by their life long "friends" how do those poor 15 yr olds stand a chance.We suffer in silence because it is too embarrassing to explain. Even when we share the condition with the people closest to us, they still don't understand the extent of our pain because we spend so much time pretending we are ok. Its much easier to hid yourself with clothes and force on a fake smile until you go home and cry yourself to sleep. We have to search for doctors who have a working knowledge of HS because most just don't know what to do.
Please sign this petition  for me and ask someone else to sign it too. I may not be the only person you know suffering with HS, I may just be the only one tired enough to get out of the shadows and demand attention.

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