Please sign this

I don't know how much good it will do as 10,000 signatures are needed and so far only 200 people have signed. Sufferers don't like to share that they are afflicted because it is so awfully debilitating, scaring and malodorous, but we need attention. We need research. We need help. Our insurance companies don't want to pay for certain treatments even though they work for some people because they are not FDA approved treatments for HS. When I read peoples stories and problems on the support group I sometimes breakdown into tears. There are young teenagers already getting the worst of it...they are miserable and they have no one there to help them or to tell them they are not disgusting. When adults can't find solace in their romantic partners and twenty somethings get called gross by their life long "friends" how do those poor 15 yr olds stand a chance.We suffer in silence because it is too embarrassing to explain. Even when we share the condition with the people closest to us, they still don't understand the extent of our pain because we spend so much time pretending we are ok. Its much easier to hid yourself with clothes and force on a fake smile until you go home and cry yourself to sleep. We have to search for doctors who have a working knowledge of HS because most just don't know what to do.
Please sign this petition  for me and ask someone else to sign it too. I may not be the only person you know suffering with HS, I may just be the only one tired enough to get out of the shadows and demand attention.

Wow two posts in one day

Little did I know...though i had a funny feeling...while I was typing my last post, my dear sweet little bunny Poppet was lying limp and lifeless in her cage. I had her for exactly 2 short weeks. I went maybe 2 days without playing with her during that time. Strangely enough, in that short and busy time, I actually grew extremely attached to her. She was very small, very gentle, seemingly loving, active, eating, drinking...a happy little bunny right? I played with her yesterday, she sniffed noses with the cat, he tapped her with his paw and she wasn't the least bit afraid...she even hopped over to get next to him. She liked to sit on your shoulder or just sit down next to you and rock back and forth. We called her our little autistic bunny, I really liked her.
So now, here I am, 27, on my first free day in ages, sitting here depressed, all about a little bunny that I've know for 13 days. I haven't loss a pet in a while...and I really enjoyed having a pet of my own. Oh well.
Now what to do with the cage and all the bunny paraphernalia.

Somehow I Never Could Believe...

So, the past 3 months of my life have been taken up with night classes, tons of homework and late night opera rehearsal. I'm tired but without regret. We all know that all I want to do with my life is sing.So tell me, why have I tried so hard to successfully keep my voice off "the grid"? Facebook, youtube, myspace....on none of them will you find me singing...well until now that is.
I have never been happy enough with any recording to let people who weren't my parents see/hear me. Unfortunately (ish) my parents are ridiculously proud and supportive of my practicing for poordom and have mass produced both my senior and graduate recital....both of which are ghastly. Still, these have not made it to the general public.
Last night, I sang what has been my favorite and most challenging role thus far. I have had an unheard of amount of time to prepare for it, so it is solid. My father couldn't be here to hear me so my roommate recorded a few scenes for me on my ipad. After checking it, I realized that I was proud of it. It isn't perfect, I make mistakes, I run out of breath, ect...but for the first time in my life, I am proud of it. I don't feel like I have to hide it away to avoid people hearing my imperfections.
So here I am, on youtube for the first time.
Click to go to Madonna's video page

(I am new to this from ipad to youtube thing...there must be a way to make it better quality, I'll work on it)